Wednesday, January 18, 2006

Waiting, waiting and more waiting - Day 2

We got to the Burzynski Clinic at 12:30 and after filling out some forms we met Dr. Szymkowski. She drilled Marie on her medical history and told us what would happen if she was accepted. She said that Dr. Burzynski would look at the MRI and PET scan and determine whether or not Marie was eligible for the clinical trial (BT-9). She then left for what seemed like hours as we waited, waited and waited. Finally, she stopped by and told us that Dr. Burzynski would be in to see us in 2 minutes (HST). Houston Standard Time (HST) runs a whole lot slower than you can imagine. 10 to 15 minutes later Dr. Burzynski walked in and told us the good news. Marie was accepted!

More paperwork was initialed and signed and finally they releaved us of a ton of money. They're going to submit the cost to the insurance company but there's no guarantee that they will pay since the treatment is experimental. By the way my back is feel a ton better. A coincidence? I think not! A heavy wallet is tough on the back.

Marie was then poked, prodded and relieved of numerous fluids to be used as a baseline. Tomorrow Marie gets a port installed and an xray done and then on Friday she starts the treatment. The good news is that we will only have to stay 2 weeks following the start of treatment.

Marie will have to have blood work done 3 times a week for the first 2 months and then it drops down to twice a week.

The clinic smells like a boy's locker and I suspect we're going to have to get use to it. Don't be suprised if you see Marie walking around with an air freshner around her neck.

6 Comments:

Anonymous forrest said...

I just want to try this out. It was nice talking with you on the phone tonight. We will keep the whole family in prayer. Have you found a church to go to this Sunday? I have been preparing my lesson for Sunday school while the family is at Wednesday discipleship classes. Good night.

5:58 PM  
Anonymous Anonymous said...

As our dear friend Larry Welk would say, what a "wonerful, wonerful, wonerful" way of staying in touch. I can't wait to hear what you all ate today!
~Karen

6:14 PM  
Anonymous Michelle said...

I love the play by plays. Thank you for keeping us all informed.
Glad your back is feeling better, Al. I wonder if Forrest's back is hurting him? Maybe he just needs to.....

6:51 PM  
Anonymous Anonymous said...

Sometimes, technology is a wonderful thing. This is a great way of keeping us updated. No jealousy here about the boys locker room smell...even though we can't relate...maybe you could use one of those BreatheRight strips in reverse? You're in our prayers.
Susan for my whole family

5:08 AM  
Anonymous Anonymous said...

Sometimes, technology is a wonderful thing. This is a great way of keeping us updated. No jealousy here about the boys locker room smell...even though we can't relate...maybe you could use one of those BreatheRight strips in reverse? You're in our prayers.
Susan for my whole family

5:09 AM  
Anonymous Neil said...

Al & Marie,

Glad to hear all is going well. God is taking care of His own. We look forward to the daily updates.

-- The Fergie Five

6:33 PM  

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